基于患者体验的口腔癌术后随访清单的构建

doi:10.19438/j.cjoms.2025.05.010

中国口腔颌面外科杂志 ›› 2025, Vol. 23 ›› Issue (5): 491-496.doi: 10.19438/j.cjoms.2025.05.010

基于患者体验的口腔癌术后随访清单的构建

陈悦^1,2, 王缓缓^1,2, 李萍^1,2, 毛艳^1,2

1.上海交通大学医学院附属第九人民医院口腔颌面-头颈肿瘤科,上海交通大学口腔医学院,国家口腔医学中心,国家口腔疾病临床医学研究中心,上海市口腔医学重点实验室,上海市口腔医学研究所,上海 200011;
2.上海交通大学医学院附属第九人民医院护理部,上海 200011

收稿日期:2025-04-24 修回日期:2025-06-15 发布日期:2025-10-10
通讯作者: 毛艳,E-mail: 1299744365@qq.com
作者简介:陈悦（1994-）,女,硕士,E-mail: 834616001@qq.com
基金资助:
上海交通大学医学院附属第九人民医院优秀护理人才计划（JYHRC22-P08）

Construction of the postoperative follow-up checklist based on the patient experience of oral cancer

Chen Yue^1,2, Wang Huanhuan^1,2, Li Ping^1,2, Mao Yan^1,2

1. Department of Oromaxillofacial Head and Neck Oncology, Shanghai Ninth People's Hospital, Shanghai Jiao Tong University School of Medicine; College of Stomatology, Shanghai Jiao Tong University; National Center for Stomatology; National Clinical Research Center for Oral Diseases; Shanghai Key Laboratory of Stomatology; Shanghai Research Institute of Stomatology. Shanghai 200011;
2. Department of Nursing, Shanghai Ninth People's Hospital, Shanghai Jiao Tong University School of Medicine. Shanghai 200011, China

Received:2025-04-24 Revised:2025-06-15 Published:2025-10-10

摘要/Abstract

摘要： 目的: 通过Delphi法构建基于患者体验的口腔癌术后随访清单。方法: 通过文献分析、半结构式访谈,初步形成随访清单雏形,采用Delphi法对16名口腔颌面头颈肿瘤专家进行2轮函询,统计分析整理专家意见,确立最终随访清单。结果: 2轮函询的专家积极系数均为 100%,权威系数 0.94,肯德尔协调系数 0.123~0.314（P<0.05）,表明专家意见集中且协调。最终清单包括4项一级指标（疾病症状管理、康复训练、辅助治疗、功能状况）、16 项二级指标及 51 项三级指标,涵盖气道护理、吞咽功能训练、心理支持、社会适应等多维度内容。结论: 基于患者体验的口腔癌术后随访清单具有科学性、实用性和全面性,可为口腔癌患者的随访提供标准化框架。

关键词: 口腔癌, 术后随访, 随访清单, 患者体验, Delphi法

Abstract: PURPOSE: To construct and evaluate an outpatient follow-up list based on patients' experiences for oral cancer patients using the Delphi method. METHODS: The initial draft of the follow-up list was formed through literature analysis and semi-structured interviews. The follow-up list was established through two rounds of Delphi consultation with 16 oral and maxillofacial head and neck tumor experts. The expert opinions were statistically analyzed and summarized to establish the final follow-up list. RESULTS: The positive coefficient of the experts in the two rounds of inquiries was 100%, the authority coefficient was 0.94, and the Kendall coordination coefficient ranged from 0.123 to 0.314(P<0.05), indicating that the experts' opinions were concentrated and coordinated. The final list included 4 first-level indicators (disease symptom management, rehabilitation training, adjuvant therapy, and functional status), 16 second-level indicators, and 51 third-level indicators, covering multiple dimensions such as airway care, swallowing function training, psychological support, and social adaptation. CONCLUSIONS: The follow-up list based on patients' experiences is scientific, practical, and comprehensive, providing a standardized framework for outpatient follow-up of oral cancer patients.

Key words: Oral cancer, Postoperative follow-up, Follow-up checklist, Patient experience, Delphi method

中图分类号:

陈悦, 王缓缓, 李萍, 毛艳. 基于患者体验的口腔癌术后随访清单的构建[J]. 中国口腔颌面外科杂志, 2025, 23(5): 491-496.

Chen Yue, Wang Huanhuan, Li Ping, Mao Yan. Construction of the postoperative follow-up checklist based on the patient experience of oral cancer[J]. China J Oral Maxillofac Surg, 2025, 23(5): 491-496.

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基于患者体验的口腔癌术后随访清单的构建

Construction of the postoperative follow-up checklist based on the patient experience of oral cancer

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