加速康复外科模式下鲜红斑痣患者光动力治疗围术期旅程地图构建与应用

doi:10.19438/j.cjoms.2026.04.011

摘要/Abstract

摘要： 目的：基于旅程地图识别鲜红斑痣患者全麻光动力治疗的多维需求,为优化该群体光动力治疗围术期的诊疗体验、形成以患者为中心的医疗支持体系提供参考。方法：运用描述性质性研究方法,于2025年9月—11月选取河南省人民医院血管瘤科的12例鲜红斑痣患者进行半结构式访谈,采用内容分析法进行资料分析并绘制患者旅程地图。结果：以鲜红斑痣患者术前期、手术期、术后期3个时期为时间轴线,从任务、情绪、痛点、机会点4个维度将鲜红斑痣患者光动力治疗的围术期旅程分为门诊就诊、办理入院、术前准备、获取优质医疗资源、心理支持、迷茫、焦虑、紧张等34个主题,并绘制旅程地图。结论：加速康复外科模式下,鲜红斑痣患者全麻光动力治疗围术期具有治疗周期短、健康管理需求复杂的特点。诊疗体验触点动态交织,各阶段的健康支持需求重点各异。优化核心交互触点可精准响应多元需求,提升整体诊疗体验与就医感受,实现优质护理全流程覆盖。

关键词: 患者旅程地图, 鲜红斑痣, 诊疗体验, 加速康复外科, 护理

Abstract: PURPOSE: Based on the journey map, to identify the multi-dimensional needs of patients with port-wine stain (PWS) undergoing photodynamic therapy (PDT) under general anesthesia, and to provide a reference for optimizing the perioperative diagnosis and treatment experience of this group and forming a patient-centered medical support system. METHODS: A descriptive qualitative research method was used. From September to November 2025, 12 patients with port-wine stain at Hemangioma Department of Henan Provincial People's Hospital were selected for semi-structured interviews. The data were analyzed by content analysis method, and the patient journey map was drawn. RESULTS: Taking the three periods of pre-operation, operation and post-operation of patients with port-wine stain as the time axis, the perioperative journey of patients with port-wine stain undergoing photodynamic therapy was divided into 34 themes from four dimensions of task, emotion, pain point and opportunity point, including outpatient visit, surgical plan confirmation, preoperative preparation, access to high-quality medical resources, psychological support, confusion, anxiety, tension, etc., and the journey map was drawn. CONCLUSIONS: Under the Enhanced Recovery After Surgery (ERAS) model, patients with port-wine stain (PWS) undergoing photodynamic therapy under general anesthesia (PDT) exhibit characteristics of a short treatment cycle and complex healthcare management needs during the perioperative period. The dynamic and intertwined clinical experience touchpoints evolve across different stages, with varying priorities in health support needs. Optimizing core interactive touchpoints enables precise response to diverse patient needs, enhances overall clinical experience and patient's satisfaction, and ensures high-quality nursing services throughout the entire perioperative process. This approach aligns with the ERAS philosophy of minimizing physiological and psychological stress while promoting accelerated recovery.

Key words: Patient journey map, Port-wine stain, Diagnosis and treatment experience, Enhanced recovery after surgery, Nursing

中图分类号:

R739.8

胡光珍, 王笑露, 黄静, 董长宪, 雷红召, 李欣露, 王翠田, 胡恒瑜. 加速康复外科模式下鲜红斑痣患者光动力治疗围术期旅程地图构建与应用[J]. 中国口腔颌面外科杂志, 2026, 24(4): 389-395.

Hu Guangzhen, Wang Xiaolu, Huang Jing, Dong Changxian, Lei Hongzhao, Li Xinlu, Wang Cuitian, Hu Hengyu. Research on the perioperative care pathway of photodynamic therapy for port-wine stain patients in enhanced recovery after surgery[J]. China J Oral Maxillofac Surg, 2026, 24(4): 389-395.

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